I noticed a strange change in my son's eye when he was a baby - it turned out to be the sign of a rare disease
![I noticed a strange change in my son's eye when he was a baby - it turned out to be the sign of a rare disease](https://i.dailymail.co.uk/1s/2024/06/11/07/85959721-0-image-a-56_1718087553731.jpg)
Lynda Smith, from the Hunter Valley, had never heard of Neurofibromatosis type 1 (NF1) until her son Tom, now 10, was diagnosed just before his second birthday.